Judith Nitchie, CMT, LMFT

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Entries in MS (14)

Monday
Apr092018

"I have MS, MS doesn't have me." Really?

sometimes yes MS does have me!

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Monday
Aug242015

Oops, I did it again - Falling redux

Approaching the park I think, 'I've got this walking thing down! Time to get back to running.' Hardly a beat and I'm flying into a 'tuck and roll' on the very same piece of sidewalk that I encountered more violently 2 years ago. No blood this time, a prettier landing, and a quicker recovery. But still.

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Monday
Aug032015

Fatigue & Spoon Theory

I really didn't get it until I got it.

In my 20's, I worked full-time in an office, headed for the dance studio for 4 to 6 hours of class and rehearsal, then, often as not, to a club to continue dancing. This did not seem extreme at the time. This was living my life. Sure I was tired, even fatigued at times, but  the solutions were simple: another cup of coffee, some jumping jacks, brushing my hair over my head-I was good to go!

M.S. fatigue is different.

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Saturday
Jul252015

Sometimes it's not about getting high! MS & MJ

Early in my diagnosis a well-meaning friend cheerfully announced, "Hey, cannabis works for MS! You should try it!"

Unfortunately he couldn't tell me what he meant by it working. A cure? Doubtful. Pain? I didn't have pain. Spasticity? Again, not my symptom.

My old memories of pot aligned all too closely with the most troublesome MS symptoms that I did have: fatigue, cognitive impairment, coordination issues, depression.

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Saturday
Jul112015

Boiling Frogs and Beautiful Music

A frog will stay in slowly heating water until it's too late to jump to safety.

 

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Monday
Jun222015

Inaccessible accessibility...making it real

The perfect storm. Both north and west sidewalk ramps were blocked. A car completely obstructed access to the closest driveway. The ramp offenders, weird irony, were abandoned police and fire department vehicles. Presumably whatever incident called them to the neighborhood had been resolved. The drivers were nowhere to be seen. This man was stuck. I stayed.

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Saturday
May092015

Form follows function

There's a rather long talky part in the service I attend on Sunday mornings. The prescribed posture is to stand during this, showing respect for the solemnity and significance of the ritual.

One of the variables of my M.S. is that even on a day when I can walk long distances, just a few minutes of standing in one place can leave me utterly fatigued. Walking, running, skipping, or even a vigorous workout at the gym might all be possible, but to stand in one place can be torture.

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Monday
Apr062015

Sometimes I just hate my M.S.

Sometimes I just hate my M.S.

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Tuesday
Jul292014

10 Commandments for interacting with the chronically ill

At the end of each of my ...for Dummies books is a section called The Part of Tens which contains useful bits of information, problem-solving tips, and reminders of things to be careful about or look out for regarding the computer program or the subject at hand.  According to Judeo-Christian tradition, Moses came down from the mountain after talking with God with a list of Ten Commandments or rules for right living.  
In response to some of the common misunderstandings and communication challenges that are rife in the arena of chronic illness, Susan Williams provides some useful guidance in her 10 Commandments for interacting with the chronically ill

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Saturday
Jun212014

About Looking Good

"The real reason so many people know someone with MS who is doing 'fine' is because so many people who have MS are putting forth a Herculean effort on a daily basis to stay active, to not lose ground, to stay in the game."

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